The Morgellons Experience; Hopeless, or is it?

Morgellons Sufferers Speak Out

In the nearly 6 years since I have been helping Morgellons sufferers I have heard thousands of stories about how day-to-day life is for the Morgellons sufferer.  Here, we offer a typical story, written by the victim, describing their horrific experiences with doctors, dermatologists and general healthcare practitioners.

If you have Morgellons disease, you do not need to suffer; there is a way out.

_______________________________________________________

Hi all,

I am a 23 year old female originally from Russia; currently living
in WI, USA. Ironically, my interest in Morgellons started way before I
caught it myself (I just read a couple articles on the weird fiber
disease and was trying to figure out if it was for real). But then, two
year ago, back in April-May of 2010 I got a weird sore on my neck. As a
teenager I’ve had pretty bad and slow-healing acne, so I figured out
this was just a nasty zit. The sore, however, continued to grow and
ulcerate, and so I went to a doctor. The urgent care intern told me
excitedly that she knows exactly what it is- MRSA! and prescribed me
sulfa antibiotics. They never helped, and more sores started popping up
on my neck. They all started the same- first something looking like a
pimple but with a hard center (impossible to squeeze out); a day or two
later, the center of the “pimple” darkened and “rotted away”, making
this ugly black/brown scab. At this point the scab was nearly
impossible to tear off, but a few days later it would soften up on its
own and fall off, forming an ulcer. The ulcer would then either never
heal or heal very slowly, while constantly weeping and oozing out stuff.
I also noticed some weird white granules that came out of the ulcers,
but I thought that those perhaps were clusters of my own body cells, so I
paid no big attention to them. The lesions became worse and worse
though, and my next dermatologist, after a quick check-up, rudely kicked
me out and put “excoriation” as diagnosis.
Thus became my long battle with dermatologists. The next one made
me take at least 2 courses of antibiotics before she would ever consider
to try something else (i.e. anti-fungals). The biopsies so far showed
no infection except some staph, etc. By that point I was searching
through hundreds and hundreds of dermatological articles on various skin
diseases, and obsessively comparing pictures of those to mine.
Finally, I decided that I’ve got sporotrichosis. This was a pretty
rational conclusion, especially taking into account that I worked in a
lab during spring break where I was exposed to hay, moss, etc, which was
also genetically altered. (Sporotrichosis is a fungal infection caused
by a tiny organism that lives on certain types of vegetation.) At
first I tried potassium iodide (SSKI) and it seemed to help somewhat
(the lesions turned from HORRENDOUS to pretty bad). And then, after a
lot of bureaucratic procedures I finally got my itraconazole and started
taking it as directed, 100 mg/day. Pretty soon my sores started
healing and clearing up, and new ones did not appear. I was really happy
and intended to finish the whole itraconazole course (3 months or so),
but what happened instead was a big surprise! I got pregnant! Alas, of
course, I could not take the anti-fungal anymore, and the lesions
slowly started creeping up back. I was afraid that both me and the baby
would be eaten by them months before I give birth, but for some reason
they did not really worsen during the whole pregnancy- i.e. the old ones
kept healing but then new small ones would pop up in a different spot.

Is Morgellons contagious?

So I continued researching the internet for other possible
diagnoses. Plus, I work in a lab and have an access to a really good 3D
optical microscope, so I checked a couple slides with the lesion skin
samples, and there were black threads embedded in the skin. That, of
course, linked directly to Morgellons, but after reading about “Intense,
pruitic itching” I dismissed that disease as a manifestation of my
paranoia, since I did not experience any itching whatsoever.

After giving birth though, I did not even consider breastfeeding-
the sores started coming back at an alarming rate, and I needed to get
rid Morgellons baby's handof them asap! Again, after a lot of tedious insurance procedures I
got an itraconazole refill. This time, however, the lesions disappeared
rather reluctantly and some of them kept coming back. I started to
suspect that there was something more to it than a “simple”
sporotrichosis (actually a pretty complicated disease, with the
yeast-shaped fungus cells often being missed in biopsies even with
special stains), so I thought that with my luck I got a case of mutated
sporotrichosis that is drug-resistant. However, I continued to take
samples of my skin and scabs to the lab and study them in detail under
the microscope. What I observed was shockingly bizzare- white, blue,
and thicker black threads all around my skin and mostly in/on the sores;
the scabs have gel-like “roots”; there are threads embedded in my
FINGERNAILS and there are also those weird creatures (the granules that
could be squeezed out) that all have a little piece of fiber sticking
out (follicles? antennas?) Finally, I googled up some close-up
Morgellons sores and scabs. Did something strike you as WEIRD about
them when you first got to see them in a bright light? They all have
these circular and curvy grooves on them that form patterns eerily
similar to something like an elm seed (see pic). The center is either a
blood bubble or a dry black dot that is impossible to pick off (but if
you do manage to, try picking it up with a magnetized needle- those
“dots” seem to be some kind of iron collections (from blood?) and might
serve as a means of “communication” between individual lesions. That
happened to me on several occasions- one sore starts itching or hurting,
and then suddenly stops, and another one on the same hand but a
distance away would do the same thing.

In conclusion, I would like to thank the people who created this
forum, since I really need some support (instead of being told that I am
crazy and sent away). I sincerely hope that (somewhat graphic) details
of my story would help somebody to figure out more about their own
conditions or perhaps, even, put all clues together to come at some
definitive conclusion about what they are. In meantime, I am wishing
everyone struggling with this nasty evil thing to find a method that
works for them, and to have enough strength and self-esteem to cope with
the frightening reality.

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About CareMan
I am the CareMan, have been for 7 years now. I really do care about YOU and getting YOU back to great, natural health, so long as you have an open mind.

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